A journey of discovery
Over the last 7
months, I have written a series of blogs about my journey to the discovery of
malignant prostate cancer and the consequent treatment with radiotherapy along
with the attendant side effects that I hope I am managing well.
I have compiled a
range of blogs and annotated each to highlight how I navigated the issues that
arose through each diagnostic and treatment stage.
The Men’s things
blogs cover issues we need to be talking about and in this case, it is the
prostate gland, the Photons on the Prostate blogs are of my experience
having chosen radical radiotherapy for the treatment of prostate cancer.
Take the test
The need to have an
eye on your prostate health is critical and you can start with the International
Prostate Symptom Score (IPSS)
Calculator. I did not know I had an enlarged prostate; I have always strained
to pee and when it started, it was a weak stream with a feeling
my bladder was not emptying completely.
It took a PSA test to determine my
prostate was enlarged, that is always the first step, but your risk is
heightened if you are a black man over 45, have had a brother or father with
prostate cancer, or have had a sister or mother with breast cancer.
The technical terms
are explained, linked, or illustrated in the blogs and I hope you find the
information useful.
Men's things – Results of my PSA
test have led to a Digital Rectal Examination; my doctor is concerned, and I received a referral.
Men's things - II – Taking a
multiparametric MRI scan of my prostate gland.
Men's things - III – Why must I have a
prostate biopsy? You have a PI-RADS
score of 4.
Men's things - IV – Bear the pain under
local anaesthetic as your reaction is informative.
Men's things - V – Some pain in the
perineum, blood in the urine, and a few notes to self.
Men's things - VI – The wait can be a
weight on your mind.
Men's things - VII – ‘Bring a friend’,
suggests you might get some interesting news.
Men's things -
VIII
– Understanding your test results is crucial to having a voice in your health
outcomes.
Men's things - IX – You have been diagnosed
with adenocarcinoma of the prostate, I knew that
already
Men's things - X – Finding yourself
on a national cancer register after a cancer diagnosis.
Men's things - XI – Understanding the
risk factors with prostate cancer in black men.
Men's things - XII – The daunting prospect
of radical prostatectomy, not pleasant.
Men's things -
XIII
– Discussing the options for radical radiotherapy of the prostate.
Men's things - XIV – Holistic
Needs Assessment managed by the Macmillan
Cancer Support charity.
Men's things - XV – It is always your
body first before it is their guinea pig, my journey of discovery.
Men's things - XVI – Centring the patient
in the medical conversation, the Predict
Prostate website and the ProtecT
study.
Men's things -
XVII
– Radiotherapy planning session, a CT scan and my first tattoos.
Men's things -
XVIII
– Creating the right mindset for a diagnosis of malignant prostate cancer;
faith.
Men's things - XIX – Image
Guided Radiotherapy (IGRT) and the first experience.
Photons on
the Prostate - I – Taking the first session of radiotherapy for prostate
cancer.
Photons on
the Prostate - II – Understanding the protocols and arrangements around
treatment.
Photons on
the Prostate - III – Independence, vulnerability, and seeking help during illness.
Photons on
the Prostate - IV – Radiotherapy; how the linear accelerator works –
YouTube video.
Photons on
the Prostate - V – Dealing with the side effects of radiotherapy;
tolerating fatigue.
Men's things - XX – Getting a sick
note and the need to be conversant of your medical situation.
Photons on
the Prostate - VI – At the halfway point, hypofractionated
radiotherapy is explained.
Photons on
the Prostate - VII – Reflecting on independent arrangements for out-patient
attendance.
Photons on
the Prostate - VIII – Dealing with the side effects of radiotherapy;
fatigue.
Men's things - XXI – The International Prostate
Symptom Score (IPSS)
Calculator.
Photons on
the Prostate - IX – Ringing the bell at the end of twenty radiotherapy
sessions.
Photons on
the Prostate - X – Dealing with the side effects of radiotherapy; the
waterworks.
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