Thought Picnic: Sometimes forgetting cancer is tough living

Misreading activity in illness

Sometimes, it takes another to bring a clear perspective to situations and things that you are in the middle of, leaving you blindsided to realities around you or impairing your objectivity and sense of judgment.

It is something you really cannot put your finger on, that you lack the mode of expression to convey. Worse still, when you find yourself writing about these issues, people might conclude everything is going well, if you can still write.

This recalls the period in late September into early October 2009, I was gravely ill and admitted to hospital and yet from my hospital bed, I was blogging, my brother assumed, if I was still blogging, I was fine. Little did anyone know that at prognosis, the worst-case scenario was I only had 5 weeks to live.

Looking on the bright side

In my two encounters with cancer, that we have taken the more positive view of a life-threatening situation does not change the fact that life hangs in the balance. Maybe the biggest battle is in the head rather than with cancer, the question being what your outlook is about a cancer diagnosis and what you hope for.

Then, even when people lose their battles with cancer, that does not mean they have not had great positivity through their ordeal, the cancer simply overwhelmed their bodies. I still aver that those of us who survive cancer have been fortunate to still be around to tell our stories, it gives us all some hope amid shifting odds.

It was quite serious

I am still grappling with the notion that in late June last year, after the diagnosis of adenocarcinoma of the prostate, I found in the doctors’ notes to each other that it was malignant. That information was never shared with me, and it took days for me to share the information with Brian. It came with a blank stare into an abyss, I did not know what to expect. I took each day as it came.

There was foreboding that anything could be the last time it was being done, but I had to put that kind of thinking away. The battle raging in my mind needed tools to see the better of things and I worked on bolstering my Christian faith by listening to sermons on faith, healing, and living well. I had to see myself getting better while a killer lurked in my reproductive system.

Just a mechanical switch

Gosh! Thanks to Wikipedia, it all makes sense now, “The prostate is an accessory gland of the male reproductive system and a muscle-driven mechanical switch between urination and ejaculation. It is found in all male mammals.” [Wikipedia: Prostate] The simplicity of a mechanical switch and the trouble I have seen, I am thankful for every great and small mercy.

I chose radiotherapy over surgery because I felt the prognosis and time to regaining the mechanical switching function having possibly lost the ejaculatory part and having little or no control of the urinary part would be long, arduous, and debilitating. Radiation would target the cancer regions, retain the switching mechanism, with varying side effects affecting bowel, bladder, and sexual function managed with medication and some lifestyle changes.

Strength even in illness and recovery

Much as I seemed to power through this experience, very few people saw the real effects and consequences of tackling this cancer apart from my partner, my closest friends, my neighbours, my colleagues as my natural voice became strained - a fatigue-laden expression, and some limited social encounters.

What I have to appreciate for myself is recovery and recuperation will take time, willing myself to do much more to regain a new sense of normalcy, I shy away from the expression, “out of the woods”, I am not in a forest of doom and despair, rather, I find myself on a journey to a wonderland of beauty, strength, and success , all obstacles giving way to a superior vehicle, the power of human faith to thrive in the midst of adversity.

While cancer is a rotten disease and the process of treatment and recovery can be debilitating, energy-sapping, and incapacitating, whatever strength one has can give one the impetus to look ahead, not because one is not ill, but there is much more to look forward to. I will not be defined by cancer; it is just part of a bigger story.

It took one friend to highlight how the last two years have been rather tough when another friend was too absorbed in himself to notice. Another story.