Thursday, 16 January 2025

A benign review of a malignant past

The shifting feasts of consulting

This was my third outing of the week after church on Sunday and the office on Tuesday. I had a rescheduled appointment from December that I attended yesterday. It was my usual biannual checkup, which has shifted from the April/October cycle to a January/July cycle in three years.

Once I realised, I would not be able to attend the early December appointment because I would be out of the country, I called to postpone the appointment and reschedule it to mid-January. I ensure I never miss my hospital appointments or consultations as it deprives others of time and audience with scarce medical personnel.

A miscommunication between us some 18 months ago meant I never received my expected scheduling for May, and we fell into a June/December cycle that only happened once. Besides rescheduling, I was promptly given a prescription to make up for the additional time.

Let’s keep to what we discussed

For this consultation, I had a few issues to discuss, the main one being the unfortunate mismanagement of information that I should not have received until I had met the consultant involved in that area of investigation and diagnosis. The computerisation of personal medical records meant that a certain diagnosis ended up in my clinic notes that the person I met should have redacted before forwarding to my doctor and I.

Blog - The note that crept in

The sinking feeling of reading a diagnosis of adenocarcinoma of prostate over a week before my scheduled appointment with the consultant urologist was as earth-shattering as it was a humbling reminder of one’s mortality. When I remonstrated with the doctor, he offered to redact the diagnosis, but what good was bolting the doors after the horses had bolted?

Meeting with the chief consultant of the team that had assumed my care for over a decade and she for about 8 years, she immediately understood the issue.

She said she would raise an incident with the multidisciplinary teams to ensure that they are aware of what information gets passed to the patient; that it is centred on their particular consultations; and that the more interested patients can assess seemingly hidden interdepartmental communications to read the chatter pertaining to them.

A malignant test of the benign

For me, what I learnt was the difference between the definition of malignant to the layperson and the medical establishment. When I read malignant adenocarcinoma of the prostate in interdepartmental communications, I read it as a qualifier of the type of cancer, something rampaging and very likely to cause death.

To the medical eye, malignant always means cancer regardless of stage or metastasis. The absence of cancer in the presence of a growth or tumour will be considered benign. [Medical News Today: What are the different types of tumour?]

My consultant patiently explained the terms fully to enhance my understanding. Other issues in my notes were from the perspective of the person I saw. Any similarities would suggest a lazy engagement, as situations and circumstances do change between visits.

All good and nice

We discussed the readings of my blood tests, and the need for new assays, though this time without a urine sample and at the end of my allotted time with a medical student present, I was handed on to the phlebotomist who had no problem drawing three vials of blood before I was sent on my way to collect my renewed prescription and I made my way home.

In all, the consultation was pleasant, and the typical readings were within normal range, it is likely I have lost a centimetre in height, and the physiotherapy to address issues in my spine will not commence until all the other medical issues are resolved.

Wednesday, 15 January 2025

Celebrating a return from illness

Many happy returns

One of the hallmarks of recovery is the blessing of returning to doing the things you used to do. After my treatment for cancer in 2010 and the regaining of strength, I travelled from Amsterdam to Antwerp. It was my first international travel in over half a year; I used to travel internationally, at least once a month.

Illness comes with privations, first obviously with health and then another pressing issue is one of means, your resources seem to not stretch as much as they used to, whether you are earning or not. The way I view things, living is wonderful and living well comes with grace and favour, for which I give thanks and praise.

Daring for strength

While going to Cape Town in November looked like returning to normalcy after cancer treatment, I was far from able, I was quite frail. Embarking on a 22-hour journey from door to door in my condition was both determined and daring, however, it was for the care and support I needed in a time of vulnerability.

It was no holiday, and it did me much good. It was also a time to be with Brian, who doted over me at every step and cautioned me about trying to make a holiday of my recuperation, much as I desired not to have our time together left to the travails of just being nursed. It stretched our resources, but needs must.

The toll of return

I was last in the office the day before I commenced radiotherapy, as I left my workplace, I indicated I might be away for a while and did not know when I would be attending again. My return to the office last Wednesday was postponed to yesterday because of the inclement weather. We have a monthly gathering of Manchester-located members of my team who meet with the head honcho.

My managers were concerned about my facility, ability, and strength to attend, but I had missed my team, the last gathering I attended was in August.

I was up quite early and altered my route to avoid carrying my trolley case up and down steps. It was still dark when I left home, we are in the winter months, and I returned home in the dark too.

Striving over wilting

The day was successful, I had forms to fill in and return on my phased return to work. My voice was hardly in fine form, it exhibited tiredness and fatigue, but I never shirked from conversation or repartee. Everyone seemed pleased to see me, they came to my desk to ascertain how well I was doing, and every serious situation quickly dampened with humour.

By the middle of the day, I was beginning to wilt. Drinking decaffeinated tea is not an elixir by any stretch of the imagination; I just had to push through.

I was not inclined to engage in a harebrained scheme that involved messy activity, but it percolated in my absence as someone still wanted it realised. I gave my candid verdict, and a discussion tomorrow might help shape expectations.

Taking things easy

What yesterday taught me was that while I have every inclination to believe that I can fully return to work, the reality is that I need to pace myself as my strength and body are not yet operating at optimum capacity.

On getting home, I undressed and was already dozing off as I spoke to Brian about my day. I was exhausted, but for the day, I made great progress. I am grateful for that. As for my next return to the office, I cannot tell, it is working from home for the near future.

Thursday, 9 January 2025

Men's things - XXII

The post-radiotherapy situation

Three months ago today, I rang the end-of-treatment bell in the radiotherapy department of Christie Hospital. Twenty weekdays of hypofractionated radiotherapy administered to the cancerous parts of my prostate gland had begun to take its toll.

These three side effects that took hold started with chronic fatigue quite early in the treatment, then insomnia, and uncomfortable bladder issues increasing the difficulty in passing urine along with sometimes stabbing and sharp pains in the urethra. The fatigue affecting my energy levels seriously impacted my natural voice which regularly fades into a tired sounding voice belying other issues.

As I have reported, my recuperation continues apace. Though I worked through the treatment and for a month thereafter, the side effects of radiotherapy had become such that I needed to totally take time off to rest, recover, and recuperate while availing myself of essential care, help, and support of my partner, Brian.

Some side effects persist, the main one around the bladder and urinary functions is managed with medication, I feel stronger and able, but I need to manage wisely my return to normalcy as it is becoming obvious that these things take time.

Take heed and test

At any opportunity especially with young and middle-aged black men, I talk about prostate health, the need for checkups and the essential work of removing stigma and embarrassment from talking about men’s things. Things around the male reproductive system that crudely and culturally define manhood, manliness, masculinity, or virility.

Any black man over 45 should be aware and conversant with their prostate health as statistically, 1 in 4 black men will encounter prostate cancer in their lifetime. The risk is heightened if your mother or sister has had breast cancer or if your father or brother has had prostate cancer. [Prostate Cancer UK: Black men and prostate cancer]

This matter should not be trifled with, if caught early you have many options for treatment and cure. What would be unfortunate is to find that prostate cancer has spread and metastasized and there is little that medical intervention can do.

Prostate enlargement or inflammation may not be indicative of cancer, but every occurrence of what is called benign prostate hyperplasia needs to be checked out. [NHS: Benign Prostate Enlargement]

Early action helps prompt intervention

You can easily determine if your prostate has problems by running the IPSS Calculator. The International Prostate Symptom Score (IPSS) is a somewhat subjective assessment of your bladder and urinary health since the prostate gland is a muscular switch that sits beneath the bladder, surrounding the urinary tract as it exits the bladder and controlling urinary and ejaculatory flows.

Regardless of the IPSS score, it might be useful in persuading your medical team to conduct a Prostate-specific antigen (PSA) test. In my case, adverse readings on other blood tests and the fact that I am in the above 45 cohort became the impetus for requesting a PSA test in early February 2024. [NHS: PSA test]

The PSA test result would determine if other investigations and interventions are necessary. Again, in my case, we caught it early, addressed the options, and commenced effective treatment, and I am on the way to full recovery.

Men's Things Blogs

Blog - Men's things - Prostate Cancer blogs

Blog - Men's things

Blog - Men's things - II

Blog - Men's things - III

Blog - Men's things - IV

Blog - Men's things - V

Blog - Men's things - VI

Blog - Men's things - VII

Blog - Men's things - VIII

Blog - Men's things - IX

Blog - Men's things - X

Blog - Men's things - XI

Blog - Men's things - XII

Blog - Men's things - XIII

Blog - Men's things - XIV

Blog - Men's things - XV

Blog - Men's things - XVI

Blog - Men's things - XVII

Blog - Men's things - XVIII

Blog - Men's things - XIX

Blog - Men's things - XX

Blog - Men's things - XXI

Wednesday, 8 January 2025

Cape Town: Is it time to lean on the fat?

How addiction hobbles our chances

Walking through a cancer hospital to the department where you are receiving treatment reveals a world of great suffering, the unerring will of humanity to survive, the purveyance of hope for which the only currency of purchase is faith that could waver depending on prognosis, pain, confidence, or despair; it is a teaching and humbling moment.

How I have wanted to walk out of that hospital and snatch a cigarette from the lips of a young smoker totally oblivious of what cancer does to the body and how the odds one faces with cancer depends of what it is, where is has been found, if it has spread and if there is a body of knowledge and expertise available to give you a chance to survive.

Then, I do not have to walk far to realise how much of a hold tobacco and nicotine has over people. As at a designated area near the entrance of the same cancer hospital, you will find patients undergoing cancer treatment huddling in corners for another drag of the poison already killing them. They give themselves no chances at all, and if they come through, good for them.

This is obese in plain sight

In Cape Town, there was something we could not unsee, when we stay in Cape Town, we try as much as possible to walk everywhere and everything is within walking distance. Even on days I did not seem to have the strength or the capacity, I made my daily 10,000 steps.

Walking alongside us or coming into view from our vantage point of observation was someone carrying just that extra extra bit of weight on their hips, their bellies, and usually both, then arms and thighs; sights to make you catch your breath.

What you cannot deny is there is an obesity problem which should be registering somewhere in the South African healthcare system. There cannot be any aesthetic value to wanting to tip the scales until the springs broke.

How you address this obvious health crisis will no doubt require tact, wisdom, and some innovative policy initiatives, it should not be ignored. You could see people who could barely move, some were panting every few steps and I cannot put a statistical value on those who might have already acquired diseases of the heart, the kidneys, the pancreas, the liver, and other related serious health problems because of this excess weight.

The fast in fast-food is weight

One other observation we made when we were in Muizenberg, some 25 kilometres from Cape Town, with long stretches of beautiful beaches that more deserted than walked, was the number of delivery bikes that attended our estate at all hours, as if most did no home cooking, but relied on fast food. We do most of our cooking, from quick preparations like stir fries to slow cooking activities, it is about the willingness and timing.

In town, the fast-food outlets are full, taking orders for tables and takeaways for patrons and the ubiquitous delivery bikers, God forfend we dignify those places with the moniker of restaurant. They offer you something to masticate and swallow, but none of it is of value to your body and if you do not work it off, it sits somewhere in your body and accumulates in fatty tissue.

Maybe the new miracle weight-loss drugs might bring respite to the South Africans we saw and give them a fighting chance, but it also must include some desire and the will to do something about it.

While everyone is free to celebrate their bodies and love who they are, while not being shamed for what they have become, we need to square the circle between feeling good and being healthy. That will not come by lying to be nice.

Tuesday, 7 January 2025

Ain't no stopping the Gen X Diamond Jubilee now

Luther Vandross - Ain't No Stoppin' Us Now (Live from Royal Albert Hall)

The starting gun

2025, our year has come, we are the first of the Generation X (Gen X) cohort born from 1965 to 1980 will celebrate our 60th birthday. What a generation we were and still are, some lost, some already grandparents, if not great-grandparents, others singularly amazing charting paths of adventure living experiences only few could imagine.

My sojourn began as 1965 was closing, earlier in the year, Sir Winston Churchill had passed on, my parents were new arrival students in the United Kingdom, and I was not expected until late March 1966, I guess I was readier to see the world before the conventional schedule.

Through my own eyes

The things I can recall from childhood are from the age of three, a birthday, days out with Joy at the arboretum, and encounters instigated by mum to attend white garment prayer meetings. Superstition has a way of sticking to you regardless of where you end up.

Of the things I do not remember but I learnt of or were told was England won the World Cup in 1966, I always entered a room and addressed everyone, “Ladies & Gentlemen”, some other funny, quirky, and interesting things, my precocity, the penchant for making conversation with strangers, our imagination knew no bounds.

The Nigeria I experienced after the Civil War was prospering, we returned to live in the north, in Kaduna & Jos, environments so familiar to my mother who had her childhood in northern Nigeria too. My schools were an international tapestry of diversity where most of the Black kids were born abroad and those of other races were born in Nigeria. We had the English accents.

Life is a story of stories

Yet, what experiences life has brought us in stories of adversity and triumph, we are at an age that when our parents breached 50, we thought they were over the hill and far away. Now that we are mostly 59 and some have already clocked 60 in the past week, we still hold on to as much of the youthfulness we can retain, and finding out that the world has changed so much as we have changed with the world.

According to the Britannica website, “Gen X is known for being resourceful, independent, and good at maintaining work-life balance. They were the first generation to grow up with personal computers and tend to have liberal views on social issues.” [Britannica: Generation X]

Let the diamond jubilees begin

Much as we would take advantage of the benefits of becoming sixty in our various domains, we are hardly the retiring type. I know, some of us want to return to university to do different courses, we have ideas we still want to implement, it is unlikely we’ll be shuffled off into irrelevance when we have such a resource of knowledge and experience to share, just as we are learning new things.

For our children and grandchildren, you will see a new kid on the block, easy to converse and have a good relationship with, willing to try things that would astound onlookers. That sense of fun, a bit of insouciance with youthful exuberance and the refusal to be too groan (grown) up to participate is something you will see a lot of.

Yes, we will be respectable and wild, snobbish and chilled, confident and ingenue, expert and tyro, growing younger as the numbers suggest we might be older. Thankfully, we are not the Baby Boomers, we are the change makers who have a purpose for living the best we can be, and we know it. You are about to see a Gen X revelation, ain’t no stopping us now.

Welcome to Gen X at 60, it is going to be a long year of diamond jubilee parties.

Photons on the Prostate - XVI

Sleep forsakes thee

It is probably time for an update regarding how I am recuperating following radiotherapy, I am up this early because I was up for most of the night, one side effect that I have not given much consideration is insomnia. I sleep to have to catch sleep whenever I can, but it messes up my day because I cannot concentrate fully on what I need to do.

For this, I should find the lifestyle adjustments that would help me sleep consistently and better in what are supposed to be the normal sleeping hours. I am careful about medically induced sleep, in fact, I have shunned offers of this kind of medication for over 15 years, especially when multiple medications then caused drowsiness, it all adds up and you want to wake up too.

Soon after radiotherapy, I also had Codeine prescribed as part of my pain management, as Codeine metabolises into Morphine, I was all too aware of the addictiveness and issues with withdrawal. I only used Codeine at night and just once a day. As soon as the pain and discomfort had eased, I began to wean myself off Codeine and I did it in a week.

Straining to pee

The bladder and urinary issues are much improved, I am on medication for benign prostate hyperplasia, basically prostate enlargement firstly due to cancer and the resulting inflammation after radiotherapy.

The urinary flow is better, checking with the IPSS Calculator, my IPSS score has fallen to 14, which is still moderate, but it is down from the 19 that was recorded just before I had the clinical consultation for the radiotherapy treatment option in late July. I must accept that these things take time.

I think Incomplete Emptying is not much of an issue, Frequency is moderate, Intermittency is low, Urgency is moderate, I have a Weak Stream, Straining is a feature of me being first as the urinals and the last to leave, I noticed that so many times in Cape Town, Nocturia is about thrice during the night, and I need an improvement in my urinary function.

The last question on the IPSS Calculator – “If you were to spend the rest of your life with your urinary condition just the way it is now, how would you feel about that?” Before I commenced treatment, I was Mostly Satisfied, the feeling now is Mixed, I might need an appointment with Urology to talk through these issues.

As I am running the IPSS Calculator under medication for easing prostate stress on my bladder and urinary tract, I would think without medication, the situation is much worse.

Recuperating in Cape Town

Indeed, at this time of the year, any visit to Cape Town would seem like a holiday. This visit was anything but a holiday, it was the most convenient place for Brian and I to meet, so he could support my recuperation, for I had neither the personal nor domestic care I needed at home, as the side effects of radiotherapy worsened.

It did us a world of good, a lot of rest, the summer weather, walks on the beach, cooked meals, and much loving care and attention. We ventured a couple of social events but none of the typical Capetonian holiday stuff like venturing out to wine estates or tourist traps.

I drink cranberry juice, hardly any carbonated drinks, I have eschewed alcohol, I probably have had three glasses of wine in three months and for tea, I have stuck to decaffeinated tea rather than decaffeinated coffee until I am happier with the urinary situation.

Singing for the crows

One lasting side effect is my voice, it sometimes gains strength and timbre, but I do not know if I would totally regain my original voice, or it would settle somewhere near what it was. It sounds tired and slightly feminine, there might be some underlying fatigue to it brought on by insomnia too, possibly a topic for discussion at my next medical appointment.

In all, I can report there is considerable progress, I do tire easily, but I also will myself to do things and find the capacity to get things done. That is a good update.

Reference

MedScape: International Prostate Symptom Score (IPSS) Calculator

Monday, 6 January 2025

Thought Picnic: Sometimes forgetting cancer is tough living

Misreading activity in illness

Sometimes, it takes another to bring a clear perspective to situations and things that you are in the middle of, leaving you blindsided to realities around you or impairing your objectivity and sense of judgment.

It is something you really cannot put your finger on, that you lack the mode of expression to convey. Worse still, when you find yourself writing about these issues, people might conclude everything is going well, if you can still write.

This recalls the period in late September into early October 2009, I was gravely ill and admitted to hospital and yet from my hospital bed, I was blogging, my brother assumed, if I was still blogging, I was fine. Little did anyone know that at prognosis, the worst-case scenario was I only had 5 weeks to live.

Looking on the bright side

In my two encounters with cancer, that we have taken the more positive view of a life-threatening situation does not change the fact that life hangs in the balance. Maybe the biggest battle is in the head rather than with cancer, the question being what your outlook is about a cancer diagnosis and what you hope for.

Then, even when people lose their battles with cancer, that does not mean they have not had great positivity through their ordeal, the cancer simply overwhelmed their bodies. I still aver that those of us who survive cancer have been fortunate to still be around to tell our stories, it gives us all some hope amid shifting odds.

It was quite serious

I am still grappling with the notion that in late June last year, after the diagnosis of adenocarcinoma of the prostate, I found in the doctors’ notes to each other that it was malignant. That information was never shared with me, and it took days for me to share the information with Brian. It came with a blank stare into an abyss, I did not know what to expect. I took each day as it came.

There was foreboding that anything could be the last time it was being done, but I had to put that kind of thinking away. The battle raging in my mind needed tools to see the better of things and I worked on bolstering my Christian faith by listening to sermons on faith, healing, and living well. I had to see myself getting better while a killer lurked in my reproductive system.

Just a mechanical switch

Gosh! Thanks to Wikipedia, it all makes sense now, “The prostate is an accessory gland of the male reproductive system and a muscle-driven mechanical switch between urination and ejaculation. It is found in all male mammals.” [Wikipedia: Prostate] The simplicity of a mechanical switch and the trouble I have seen, I am thankful for every great and small mercy.

I chose radiotherapy over surgery because I felt the prognosis and time to regaining the mechanical switching function having possibly lost the ejaculatory part and having little or no control of the urinary part would be long, arduous, and debilitating. Radiation would target the cancer regions, retain the switching mechanism, with varying side effects affecting bowel, bladder, and sexual function managed with medication and some lifestyle changes.

Strength even in illness and recovery

Much as I seemed to power through this experience, very few people saw the real effects and consequences of tackling this cancer apart from my partner, my closest friends, my neighbours, my colleagues as my natural voice became strained - a fatigue-laden expression, and some limited social encounters.

What I have to appreciate for myself is recovery and recuperation will take time, willing myself to do much more to regain a new sense of normalcy, I shy away from the expression, “out of the woods”, I am not in a forest of doom and despair, rather, I find myself on a journey to a wonderland of beauty, strength, and success , all obstacles giving way to a superior vehicle, the power of human faith to thrive in the midst of adversity.

While cancer is a rotten disease and the process of treatment and recovery can be debilitating, energy-sapping, and incapacitating, whatever strength one has can give one the impetus to look ahead, not because one is not ill, but there is much more to look forward to. I will not be defined by cancer; it is just part of a bigger story.

It took one friend to highlight how the last two years have been rather tough when another friend was too absorbed in himself to notice. Another story.