Insist and be insistent
Some encounters with the
medical establishment can be unbelievably sublime and others exhibit inertia and
obduracy, you might find pulling teeth a greater pleasure to enjoy. Here I was trying
to get a sick note that I was told was easily obtainable and assured would be ready
on Monday only to meet with a bureaucratic reluctance to fulfil what clearly everyone
concerned knows is needed.
As with these things,
I insisted against their prevarication, eventually someone cottoned on the idea
that I was here for new excuses or postponements, something had to be done and so
they sought out a late shift doctor and somehow found a stache of ‘Statement of
Fitness for Work’ forms to be annotated and initialled by the doctor.
Their first attempt was
clumsy, signing me totally off activities and the hospital stamp was upside-down.
My reaction brought a reconsideration, and they did it properly with the
caveats I wanted. It was an easy enough job with the will and opportunity to do
it, hardly an encumbrance, this is a hospital, for crying out loud.
Just that spike is all
you need
As I was chatting to a
doctor, I also felt I could ask about the last two blood tests conducted a fortnight
before my first radiotherapy session, my glimpse of the blood form indicated both
the Prostate-antigen specific (PSA) and testosterone levels. I could not find the
results anywhere as they were not communicated to my GP.
My PSA had fallen to within
normal levels and testosterone was reading levels on the low side of the normal
range. There must have been some other indicators in earlier blood tests to suggest
I did not need hormone therapy before radiotherapy as testosterone has never been
in the cachet of tests I have done before.
If I had not unilaterally
pursued the need to recalibrate readings from my blood tests in February towards
remediation by intervention, we would never have been on this track to discover
prostate cancer and it might have been seething and growing undercover, but for
that spike in my PSA in March that forced an investigation.
Do the graft on your bloodwork
It is no doubt incumbent
that anyone with a modicum of literacy must take immediate interest and seek to
understand what the results of blood tests are whether they fall in the normal ranges
for your demographic and where they do not, ask questions and be unrelenting until
this is explained in the simplest of terms. Err towards interventionism than otherwise,
cancer is not something you wait and see grow like a wild weed in your body.
Demand answers and seek
a second or even third opinion, speak with experts and learn all you can to be sure you are getting the best treatment towards the most beneficial outcomes.
If you must go private and have the means to do so, do not count the cost and end
up paying a costlier price.
The goal is the best outcomes
It took 7 months to get
from my first request for a blood test to where the prostate cancer is being effectively
treated with radiotherapy. I will cover in more detail sometime in the future, why
I opted for radical radiotherapy over a radical prostatectomy. It was about the
post-treatment quality of life more than anything else.
If anything, and for about
15 years, I have learnt and understood that your biggest advocate for the best outcomes
when engaging the medical community is you, your voice, your initiative, your instigation,
and your relentlessness. You are the centre of your diagnostic, prognostic,
and therapeutic options. Remember, it is always your body first before it is their
Guinea pig, that premise is non-negotiable.
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